Jamie’s Story with NITYR® (nitisinone) Tablets

Living a full life with Hereditary Tyrosinemia Type 1 and NITYR

"For someone with Hereditary Tyrosinemia Type 1, I understand the struggle you are going through every single day – remembering to take your medicine, your formula, sticking to your diet – and it’s not the most fun thing to do. But it’s also not that hard. It gives you energy, it makes you feel better, it just gives you a healthier life and who wouldn’t want that?"

Convenient to Use

A few years ago, Jamie was introduced to NITYR by her doctor who explained that NITYR contained the same active ingredient, nitisinone (NTBC), as her current medication, but that NITYR could be a more convenient option for her whilst balancing her busy college routine with her social life and favorite activities like basketball. Jamie decided to trust her doctor, gave NITYR a go and hasn’t looked back since.

Jamie also benefits from the once daily dosing option* that comes with NITYR, which allows her to take all her NTBC medication for the day in the morning, freeing up her day to focus on what matters to her.

"What I really like about NITYR is that the pills are extremely small.1 It makes it easy to swallow, and your life a little bit easier."

There’s more about Jamie’s message to the Tyrosinemia Type 1 community in this video

What I Like About NITYR

Support Every Step of the Way

As part of the NITYR Experience, support is available to Jamie every step of the way. She receives timely calls to check in on how she is doing, if she has enough medication on hand or if a shipment needs to be scheduled to her home, saving her the hassle of collecting the medication from the pharmacy. Something Jamie finds very beneficial and means she has one less thing to worry about.

In addition, Jamie has been utilizing the Patient Nutrition Program** through Cycle Vita™, to support her in adhering to the diet plan set out by her healthcare team. Jamie works closely with a Registered Dietitian at Cycle Vita and can ask questions about her diet when she has them.

"It’s like having a best friend. It makes my life so much easier."

NITYR offers product support, every step of the way

For anyone thinking about trying the NITYR Experience, Jamie has a clear message:

"Give it a go. It could just make your life way simpler, so you won’t regret it."

* Available for patients 5 years of age and older who have undetectable serum and urine succinylacetone concentrations after a minimum of 4 weeks on a stable dosage of nitisinone. Ask your Healthcare Provider for more information.
** Some areas of support may not be accessible to all patients. Eligibility criteria may apply to ensure compliance with all applicable federal and state requirements, and benefits may be limited to commercially insured patients only. For more detailed information about eligibility, terms and conditions, please contact the Cycle Vita team at 888-360-8482.

At the time of filming, Jamie was taking NITYR and was compensated for her time.


1. Data on file: REF-00041