Useful Resources for Patients with Tyrosinemia Type 1
These resources are intended to support you and your loved ones in managing life with Tyrosinemia Type 1.
Through our support program, Cycle Vita™, we host regular sessions for patients and caregivers.
Practical support for families managing Tyrosinemia Type 1
This online workshop was designed specifically for parents and caregivers who want to feel more confident managing a low-tyrosine and low-protein diet at home and beyond.
Finding new low-protein and low-tyrosine recipes can take time, which is why we regularly share new ideas on our Cycle Vita Instagram, allowing you more time to focus on other things.
Discussion guide
Are you considering switching from another nitisinone product to NITYR? Download this discussion guide to help you start a conversation with your healthcare provider.
Enrollment form
If you would like to enroll yourself or a loved one in NITYR, download an enrollment form and share it with your healthcare provider.
Patient initiation brochure
Read more about NITYR in this patient initiation brochure, available in English or Spanish.
Instructions for use
Need help with how to take NITYR tablets using an oral syringe or mixed in applesauce? Read the instructions for use as a reminder. This information does not take the place of talking to your healthcare provider about your medical condition or your treatment.
Additional Resources*
National Organization for Rare Diseases (NORD)
NORD is a patient advocacy organization, dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research and patient support. Visit site.
The Network of Tyrosinemia Advocates (NOTA)
Starting as a simple Facebook Group, NOTA is a large community of families and friends who are or know someone who is affected by Tyrosinemia. Visit site.
The Tyrosinemia Society
The Tyrosinemia Society is the first and only international patient advocacy group for patients and families affected by Tyrosinemia that is led by a healthcare provider and a mother of two patients with Tyrosinemia. Visit site.
The Groupe d’Aide aux Enfants Tyrosinemiques du Quebec (GAETQ)
The Quebec Tyrosinemic Children’s Aid Group (GAETQ) was founded by parents who wanted to give themselves the means to address their child’s illness. The group provides resources for parents to meet the needs of their child with Tyrosinemia Type 1. The website is in French. Visit site.
Get Involved
888-360-8482
*Cycle Pharmaceuticals is not affiliated with these organizations. These organizations are provided for reference, and Cycle Pharmaceuticals does not recommend one over the other. The content of these websites is the sole responsibility of the website providers. Cycle Pharmaceuticals cannot guarantee the services offered by these organizations and does not control, review, edit, or influence this third-party content.
Cycle Vita™ is a trademark of Cycle Pharmaceuticals Limited in the United States.